I can not begin to tell you what a big deal this is and how hard this is for her. Normally she needs us to stabilize her rt. knee, or hold her arms - some type of support. I had been able to get her to stand alone for a max. of 5 secs. before her legs give out or she starts crying and panicking to be "all done!".
I told her to stand strong so I could tie her shoe and she just kept standing! She stood alone for maybe an entire 60 or 70 secs. That is an eternity for her. I am so proud. She seemed quite pleased with herself! She is a miracle in the making.
On another note - we got a letter in the mail yesterday from Shriner's hospital in Erie, PA saying that Ember has an appt. with their upper extremity orthopedic surgeon on May 30. I had applied for care there months and months ago and had sort of written it off but now we go soon!