Tuesday, October 25, 2011

Another Philly trip down

Ember had a real quick trip to Philly for her initial fitting for a prosthetic foot. This is how Ember feels about drs. these days!

However, fortunately for her there was no pain this visit. I hope that getting this prosthetic will help Ember start the road to standing up and maybe walking. Our next visit on Nov. 7 will be a big one. She meets with the surgeon for her upper extremities, the surgeon for her lower extremities and she will get to take home her new foot! It will be interesting to hear what the next course of action will be for Ember's treatment. We are also seeing a hand surgeon here locally and getting their opinion on treatment. I can see having to make some decisions in the near future about which course to take, what is best for Ember, what is best for our family, finances, etc. Traveling to Philly is not ideal. It is by no means cheap or convenient. But we have to balance what gives Ember the best outcome. For others who are in same position - how do you decide? How do you manage?
Here are some pictures of Ember's prosthetic fitting.


  1. Praying for you all with your many decisions to make. I am so excited for her. She is growing so big. The kids will be so glad to hear about her new foot, etc. Hugs to both of you, Grace

  2. Poor Ember! I know you hate for her to be so sad about going to the doctor. Praying for you as you make difficult decisions! I can't wait to see her when she gets her new foot.

  3. WOW! Modern Medicine can be such a wonderful thing! So happy that Ember is able to have choices for her future! I know you as a family will make the right decisions. I will be praying for her to adapt, for you to stay strong, and for the drs to have good judgement! What an exciting and stressful time! Love and Prayers from South Carolina, Becky and family

  4. Aww poor baby. Praying it will all be worth it in the end!

    I just wanted to drop by and say "Hi" from After the Rainbow. If you need anything please feel free to contact me and also make sure to take advantage of the After the Rainbow group (email me if you need an invite). ATR is such a great group of families and such a wealth of experience and support!

    Rachel Whitmire
    Post-Adoption Care Coordinator
    Reece's Rainbow Down Syndrome Adoption Ministry